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Lydia’s Story

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Young BraveryPediatric Low-Grade Glioma (pLGG)

Growing up in Fairfax, Virginia, Lydia was a busy child, participating in soccer as well as singing and playing the piano. But she had to stop doing the things she loves when she became sick and doctors couldn’t figure out why.

It wasn’t until Lydia began to lose her vision that doctors finally discovered she had a large brain tumor called a pediatric low-grade glioma (pLGG), which St. Jude Children’s Research Hospital says is the most common central nervous system tumor in children.

For 14-year-old Lydia, that meant she needed major surgery.

Lydia and her mom, Shannon, walk us through what it’s like to undergo a major operation at such a young age, and how it made them both stronger and more hopeful for the future.

Also featuring in-depth commentary from renowned expert Lindsay Kilburn, MD, Pediatric Neuro-Oncologist, Children’s National Hospital.

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