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Ben’s Story


Living A Full Life With A Royal Disease – Hemophilia

Ben Shuldiner learned very early in life that Hemophilia B, a hereditary bleeding disorder, he inherited, where blood cannot properly clot to control bleeding, could either define him or that he could rise to another level and define himself. He chose the latter and forty-plus years later, the Magna Cum Laude graduate of Harvard and youngest school principal in New York history is living an amazing life while experiencing firsthand the enormous progress in the treatment of this extremely serious disease – from his early childhood when HIV/AIDS tainted blood products meant he would only receive treatment for his hemophilia if he was injured, leading to lifelong injuries he deals with daily, to today’s medication options that have dramatically changed his life for the better and are literally light years ahead of what was available to those born a hundred years ago who had a life expectancy of only 11 years old.

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