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Kira’s Story


Rebels of Perseverance – Alagille Syndrome

Alagille syndrome is a very rare genetic condition occurring in 1 in 30,000 children that are born.

When doctors discovered Kira’s serious liver issues, genetic testing led to her appropriate diagnosis with Alagille syndrome, and her family to seek clinical trials for aid with some of her most debilitating symptoms.

With no cure, these disease-modifying therapies have the potential to change the lives of all who, like Kira, are affected with Alagille syndrome.

Featuring renowned expert: Dr. Noelle Hanako Ebel, Clinical Associate Professor, Pediatrics at Stanford Medicine Children’s Health.

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